Jail Break

The warden gave us a "get out of jail free" card! Well at least until Labor Day Monday. Chelsea and I are so excited to be home. It was a really long drive but very worth it to be back home with Bryan and Eric.

Chelsea still has to be careful about being around a lot of people while her immune system is compromised but she was told to do "one fun thing" to report back on. I think she is going to do movie night with her friend Shelly and rent some DVDs. They will make some snack food - and there will be more snacking and talking than movie-watching but I know it will do her so much good to be around her friends again.

This visit home is really a very promising sign that she is recovering well. There has been no mention of when we can go home for good but we are just going to enjoy this long weekend!

Happy Holidays to all!
Stacye

Another Good Scope!

Hi- Great news that this week's scope also shows no signs of rejection! Thank you God! You are so awesome!

Chelsea's steriods were reduced by another 25% as a result and she can now go on a reduced scope schedule starting next week.

Nothing but good news all around. Thanks to all of our friends and family for the prayers!

Love to all, Stacye

99 Lbs!

Hi Friends-

Chelsea had a great clinic visit today. She is up to 99 pounds; which must be a pretty amazing accomplishment because everyone is so happy that she is doing this all on her own without any tube feedings. Apparently it is pretty rare that a transplant patient like Chelsea can adapt to real food so easily. And she is not only maintaining her weight but is posting weekly gains. She has another 5 lbs to gain but they are very happy with her progress so far.

Chelsea also had a completely clean scope last week - no signs of rejection at all. She will have another scope tomorrow, it would be wonderful if this one also comes back clean so we can lessen the steriods and have scopes less often! So tomorrow's scope is an important one.

Will keep you posted!

2 Month Transplant Birthday

Chelsea has her 2 month transplant birthday today and she really has come a very long way during this period. She maintained her weight this week (did not lose further), had a good biopsy last week with no signs of rejection, and continues to improve in exercise and diet every week!

We moved over the weekend to the Residence Inn and that has been a positive thing. We can cook now - which is a blessing for me since I was addicted to the cafeteria onion rings! (Chelsea is not the only one that has stepped up their eating). So I am glad we are away from the hospital for a number of reasons, although they do have breakfast buffet here every morning at the hotel so I may be trading one problem for another :).

Thank you for continuing to pray for Chelsea. God has been so wonderful and deserves all the praise for the healing that Chelsea has experienced. Please pray for the donor family today, these transplant birthdays always bring to mind their loss and we hope that they are in the midst of healing too.

First week as Outpatient

Hi Friends- Chelsea has had a pretty great first week as an outpatient. She is sleeping a little better, has been eating more, and getting more exercise. The only downside that she is currently facing is maintaining her weight. Chels is down to 95 lbs which is over a 10# weight loss. Not sure how the doctors plan to address but she is trying very hard to eat every couple of hours. We should have a plan to address next week if she continues to lose weight.

She had her first outpatient scope, still waiting on the results of the biopsy to make sure rejection is still in check. But overall, Chelsea is really doing well. I think she looks so good and her spirits are much better now that we are away from the hospital.

Looking forward to the move this weekend!

Free At Last, Free At Last

Hi - Chelsea moved to outpatient status Thursday evening!  That means she left the hospital as an in-patient but has to stay in Pittsburgh for a few months as out-patient. She will go back to the hospital for clinic 3 days a week for labs, check-ups and rejection scopes.  But this move is a huge step in the right direction!  It is nothing short of miraculous how far she has come in less than 2 months.

We are staying at Ronald McDonald house; but plan to move to the Residence Inn next weekend.  We can stay in a suite that will give us more room and a full kitchen.  Hoping that cooking again will get Chelsea's appetite back.  She is doing great in that respect though - she has hit 1000 calories per day on her own, shooting for 1200 calories. 

Michael came up for a quick visit and it was great seeing him. 

Special thanks to Jim and Christine for all the help back home. You guys are just the best!

Aug 2 - almost 7 weeks post transplant

Chelsea had a great scope yesterday - no signs of rejection, only of regeneration! If we have another good scope on Thursday, then we can start discussion on outpatient status - woohoo! Maybe as soon as Monday if all goes good.

Chelsea will also be coming off TPN (IV nutrition) today, she will still get IV fluids but they want all of her nutrition to come from eating. Chelsea has really started to step up her eating, she is up to about 800 calories a day on her own. She needs to add another 400 calories to that, which sounds awful to her but sounds like a dream assignment to me ( I wish someone would ask me to add more calories to my diet!).

Missing everyone, thanks for thinking of us and including Chelsea in your prayers!