Wednesday, July 13, 2011

On the roller coaster

Hi- Some not so good news to share. Chelsea is experiencing a rejection and is currently on steroids to address. The doctors have assured us that this happens in almost half of intestinal transplants, especially at the 4-6 week mark. They are addressing aggressively with IV meds. But needless to say, it is worrisome and the medicines that Chelsea are on are not making her feel too good. But she is hanging in there and is trying to stay positive in attitude. She has another scope tomorrow to see how well the meds are working. Please keep her in your prayers.

The better news to share is that she had the NG tube taken out earlier this week and is now back on regular diet. We ordered some crepes from a local restaurant today and the food was really excellent. Hoping that this helps get her appetite back but it will take some time before she feels like eating back to normal level. Chelsea is doing so well otherwise that she is able to leave the 7th floor each day for a couple of hours. The change in scenery is much needed and does help us realize that this is not forever. We will be at four weeks in-patient tomorrow so cabin fever has definitely set in.

Thanks to everyone for all the cards and letters! Special thank you to Aunt Joy, Uncle Frank and Aunt Margaret. It was so nice to receive your cards today and Chelsea feels the love and prayers!

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